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Links to Online Resources
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1 The Arc of the United States
The national organization of and for people with mental retardation and related developmental disabilities and their families.
2 Association for Spina Bifida and Hydrocephalus
Aims to improve services for people with spina bifida and/or hydrocephalus, to work with them to extend their choices, and maximise opportunities for independence and achievement. Serves England, Wales and Northern Ireland.
3 National Spinal Cord Injury Association
Interests are in improving care, producing results in research, and addressing everyday living issues that confront all people who use wheelchairs.
4 Little People of America
Nonprofit organization that provides support and information to people of short stature and their families.
5 Tuberous Sclerosis Alliance (previously the National Tuberous Sclerosis Association)
Only national voluntary health organization for the genetic disorder known as tuberous sclerosis complex (TSC).
6 FRAXA Research Foundation (Fragile X Syndrome)
Supports scientific research aimed at finding a treatment and a cure for fragile X syndrome.
7 Prader-Willi Syndrome Association
Provides parents and professionals a national and international network of information, support services, and research endeavors to expressly meet the needs of affected children and adults and their families.
8 Spina Bifida Association of America
Promotes the prevention of spina bifida and enhances the lives of all affected.
9 Children with Spina Bifida: A Resource Page for Parents
Information and resources intended to be a service to parents of children who have spina bifida.
10 Down Syndrome Empowerment Network
Composed of web site contributions from experienced professionals and knowledgeable parents who are subscribers to the Down Syndrome listserv and newsgroup.
11 Spinal Cord Injury Resources
Spinal Cord Injury Resources.
12 American Spinal Injury Association
Educates members, other healthcare professionals, patients, their families and the public on all aspects of spinal cord injury and its consequences.
13 SCI Connection
A meeting place for individuals with Spinal Cord Injuries---on the World Wide Web.
14 MS World
Provides global internet community support to people with Multiple Sclerosis.
15 Myasthenia Gravis Foundation of America (MGFA)
The only national volunteer health agency dedicated solely to the fight against myasthenia gravis.
16 National Osteoporosis Foundation
Promotes lifelong bone health in order to reduce the widespread prevalence of osteoporosis and associated fractures, while working to find a cure for the disease through programs of research, education and advocacy.
17 Amputee-Online
Amputee oriented site.
18 International Federation for Hydrocephalus and Spina Bifida
A world-wide umbrella organization having a contact net for Spina Bifida and Hydrocephalus in more than 40 countries.
19 American Hyperlexia Association (aha)
Goal is to identify hyperlexia, to promote and to facilitate effective teaching techniques both at home and at school, and to educate the general public as to the existence of the syndrome called hyperlexia.
20 Post-Polio Syndrome Central
Good resource with information, events, links, email discussion lists and UseNets Groups and more.
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