TLG provides direct services to families of infants and children within the Bay Area in which a parent, parenting grandparent and/or child has a disability, medical issue or developmental concern.
In 2012, TLG served 2007 clients, 91% living in poverty: 1236 individuals in 354 families received regular services (typically, once or twice a week) of home-based mental health services and early intervention, or daily attendance in TLG’s Early Head Start center; additionally, 771 children were served through groups/playgroups or TLG’s developmental or mental health consultation to Head Start and Early Head Start centers in Oakland. Of our 2007 clients in 2012, 42.3% were Latino/Hispanic, 33.5% African-American, 8.8% Caucasian, 6.6% Asian/Pacific Islander, 0.3% Native American, .5% Other, and 8% Mixed Ethnicity. 63.3% of the clients we served were from birth to 4 years old, 6% were ages 5 to 6, 7.3% were ages 7 to 12, and 3.3% were ages 13 to 17. In 131 of the 354 families both parent(s) and child(ren) had disabilities. 90% of the clients were in Alameda County, with the remainder in Contra Costa County.
The National Center for Parents with Disabilities and their Families
The National Center continues TLG's overall mission of empowering parents and potential parents with disabilities by disseminating disability-appropriate information regarding parenting to parents, disability advocates, and legal, medical, intervention and social services providers. The Center's overall goal is to increase information and support more disability-appropriate resources for parents with disabilities and their children throughout the U.S.
In addition to Mothers and Fathers with Disabilities, our national resources are also available to other family members such as grandparents and other relatives who live in the household and are involved in nurturing and raising children in the family. Nationally, there is an especially dramatic increase in the number of number of grandparents who are primary caregivers of their grandchildren, and TLG is committed to ensuring that grandparents and other family members are recognized and included in all The Center's activities concerning parents with disabilities.
The National Center staff provide individualized consultation and training regarding a wide variety of parenting issues including custody, adoption, adaptive parenting equipment, pregnancy and birthing. Each year, we respond to several thousand requests for information. Requests for information, consultation or training can be made via toll-free telephone (voice or TTY), email, letter or FAX. In addition to conducting research and providing consultation and training, the Center's other major activities include: developing and disseminating numerous publications and training materials concerning parents with disabilities; maintaining a national clearinghouse of nearly 3,000 articles, reports, videos, curricula, and periodicals concerning parenting with a disability; and, coordinating a national network of parents with disabilities. Our National Center has also hosted two international conferences (in 1997 and 2002) on parenting with a disability. These conferences were attended by several hundred parents, advocates, professionals and family members from most U.S. states as well as several other countries including: Australia, Brazil, Canada, Germany, Japan, Kenya, Nepal, Northern Marianas Islands, Philippines, Sudan, Sweden, Uganda, United Kingdom, Uzbekistan and Zimbabwe. These conferences included workshops and presentations given by internationally-recognized experts in their field and provided the opportunity for networking and in-depth dialogue among parents, researchers and practitioners.
We have conducted numerous research projects of national significance concerning families with disabilities since 1982. All our research is conducted from a non-pathological and disability community perspective. As part of The National Center for Parents with Disabilities and their Families, we are conducting eight national research projects and seven development projects.
Previous TLG research projects have included a National Study of Parents with Disabilities and their Teenage Children, a national survey of parents with disabilities, research on adaptive babycare equipment, specific studies of deaf parents, mothers with visual disabilities, parents with developmental disabilities, pregnancy and birthing issues, access to Head Start, and federal and state policies affecting parents with disabilities. Several publications are available regarding these research studies and findings at TLG's Online Publications.
Through the Looking Glass completed a three-year field-initiated project to develop an evaluation assessment tool and training for occupational therapy students and clinicians to inform their work with parents with physical disabilities. The Baby Care Assessment (BCA) for Parents with Physical Limitations or Disabilities project was funded by NIDRR, and was based on 14 years of TLG's clinical experiences and a series of previously funded NIDRR grants regarding adaptive babycare equipment. The Baby Care Assessment (BCA) for Parents with Physical Limitations or Disabilities: Occupational Therapy School Curricula is now avaliable.
Nationally, TLG provides individualized consultations concerning adaptive equipment through its National Resource Center. We have also developed several publications and training materials on adaptive babycare equipment including Adaptive Baby Care Equipment: Guidelines, Prototypes & Resources. This publication includes: guidelines for problem-solving baby care barriers; photographs and descriptions of prototypes and resources for adaptive baby care equipment; adaptive baby care techniques; adaptive baby care equipment checklist; commercial product safety commission guidelines; video and training curriculum for OTs; and local and national resources. We recently produced 3 DVDs on parenting adaptations for parents with particular functional limitations or disabilities (parents with repetitive stress, pain and fatigue; parents who use one hand; and parents with significant physical disabilities. All these materials are available in our online publications store.
Within the Bay Area, TLG provides adaptive baby care equipment as well as an equipment lending library for parents, expectant parents or parenting grandparents with physical disabilities.
Trainings, Presentations and Workshops
Bay Area Parents with Developmental Disabilities / Intellectual Disabilities
Bay Area Parents with Disabilities & Deaf Parents
Please also see our Report of the Bay Area Parents with Disabilities and Deaf Parents Task Force.
Bay Area Parent Support Groups
TLG also facilitates a support group for mothers with intellectual disabilities.
Photos: Rene Buchgraber
Additional resources and information regarding Parents with Intellectual Disabilities
For more information contact: